December 14, 2011

My first visit to the stem cell clinic! It felt strange to cross the border into Tijuana and not head west on the toll road to Ensenada, my historically frequent destination for yacht delivery and repair calls. Yesterday, my friend Dave and I headed southeast on Paseo de Los Heroes to Hospital Angeles, home of the Regenerative Medicine Institute (RMI). My appointment for electromyography and blood testing served two purposes: the tests were required as part of my application for treatment, and it provided me an opportunity to inspect the facilities first-hand and meet the medical team that would potentially treat me with stem cell therapy.

When I first considered the notion of seeking medical treatment in "TJ", I had visions of waking up on the operating table to find a fresh scar across my side as I watched my kidney being carted off to the black market of vital organs. As I researched the clinic further, my fears of being taken advantage of by charlatans and snake-oil salesmen eased. A number of affiliations with US medical schools, biotech firms, and accrediting organizations had me feeling more convinced of the clinic's legitimacy. RMI has subjected itself to institutional review, site audits, and continuing oversight by the International Cellular Medicine Society, a US-based non-profit working toward the advancement and standardization of cell-medicine.

Now that I've seen the hospital and clinic, which appear perfectly modern, clean, and well-equipped, and I've met the medical professionals who will treat me (most of whom speak fluent English), I'm ready to pull the trigger. I understand that there are risks involved and that there is no guarantee of success, but the possibility of increased recovery is worth it to me. I'll keep you posted!

December 12, 2011

A few more turns of the wrench and I'll be rolling on a new Intrepid hand cycle! Cycling has long been a favorite avocation and I'm ready to start racking up some miles on this new trike. At first, the miles will be flat and mostly downwind, but I have to start somewhere. Not only will the hand cycle be an integral part of my fitness program, it will be good for my soul! I never realized what a bike-nerd I was until I couldn't ride. I've missed the sound of the tires humming beneath me and the clean, mechanical purr of a well tuned drive-train. The moment I settled in the seat during the first fitting, I began to feel like I was back in my element. I should be riding by this weekend and will be sure to post pics as soon as I have some! Thanks again to the generous donors who made this happen, especially Cousin
Lori who ran the Chicago Marathon to raise funds for the cause!

November 30,2011

"There is nothing-absolutely nothing- half so much worth doing as simply messing about in boats."- The Water Rat, Wind in the Willows. Boats embody the spirit of possibility- so many places they might take you, so many things you might see and do! Many of my fondest memories involve my experiences on boats. As we drove out the Shelter Island causeway, the boatyards, marinas, and yachts stirred in me a familiar sense of wanderlust. Our destination was Challenged America, an adaptive sailing program that provides opportunities for disabled people to get out and sail, both recreationally and competitively.

We had come to the program to get my father and my sister checked out on the program's Martin 16 sailboats so they could sail as my able-bodied companion. After reviewing the rigging procedures for the two-seat, 16-foot sloops, we shoved off and set sail across Americas Cup Harbor. As we reached the open waters of San Diego Bay I heard a shout from my starboard side, "last one to the buoy is a rotten egg!" yelled Steve, the volunteer sailing with my sister. Something about the proximity of a similar boat compels sailors to coax every last bit of boat speed from the sails. The little boats handled nicely- the most fun I've had at 4 knots!

I'm excited to have been introduced to the Challenged America program and look forward to racing in disabled regattas in the near future.

November 10, 2011

When I turned 39 last year, I began planning for my 40th birthday. Committed to doing something adventurous to mark the big four-zero, I brainstormed over my world atlas- trekking in the Himalaya? Perhaps a multi-sport adrenalin tour in New Zealand? Whatever the trip was, wherever it might take me, I was going to go big. On January 27 I broke my neck and all plans went out the window.

Happy to simply be alive, I had no aspirations for an "extraordinary" 40th birthday. I anticipated dinner with family and a few friends- nice and mellow. Little did I know, my friends and family had something else in mind for me.

The first of many surprises last weekend occurred Thursday as I rolled up the boardwalk in Pacific Beach. Expecting to meet my brother Dan and long-time buddy Chris and his wife Gina (who gets HUGE kudos for orchestrating much of the fun last weekend!), my jaw dropped when I noticed James, Jennifer and Kellie strolling toward me- my best friends from my youth in Michigan had flown in to celebrate with me!

Saturday morning, my friend Dave arranged for me to go sailing with the Challenged America adaptive sailing program. I had not been on the water since my accident and being at the helm of a boat again was a surprisingly emotional event for me- thankfully, my sunglasses concealed the tears of joy that welled up in my eyes as we tacked across San Diego Bay.

Shortly after sailing, I was floored again as I rolled out of the elevator at The Fiddler's Green restaurant and into a chorus of "Happy Birthday" sung by the crowd of family and friends lying in wait. Friends, old and new, had gathered to wish me well- some of whom had flown in just for the day(Adam and Murph, you guys are animals!) Thank you for making my 40th a day to remember!

I also want to thank everyone who couldn't be here in person but were certainly with me in spirit. Your cards, calls, emails, texts, voicemails, and web posts have kept my spirits high and you inspire me to keep at it for another 40!

LOVE TO ALL,
Eric

October 23, 2011

Entering through the front door at Intrepid Equipment, Carl and I found ourselves in a jungle of chromoly steel, aluminum, and rubber. We visited this local builder of hand cycles a few days ago and met with the founder Graham Butler. Numerous bicycles, recumbent tricycles,and wheelchairs of various shapes, sizes, and configurations were shoe-horned into the office-cum-workshop. The sounds and smells of a metal fabrication shop filled the air and as we made our way further into the facility, I couldn't help but recall the droid recycling plant in "The Empire Strikes Back". After touring the shop and meeting the crew, I knew I had come to the right place to find a hand cycle. We spent the next hour pouring over catalogs, selecting the components, gearing, tires, and other equipment that would make this machine work for me and my capability/disability. Committed to fitting his clients with the right equipment, Graham even offered to set up a similar demo bike and invited me back for a test ride later this week. Thoroughly geeked out on bike stuff, I left excited and anxious to ride the rig we had just brainstormed into existence.

The portent of returning to cycling lifts my spirit and I thank those responsible: the family and friends who supported my cousin Lori Ervin's running of the Chicago Marathon for my benefit. You are providing me with a piece of equipment that will greatly improve my physical fitness, mental health, and overall quality of life.

Thank you!

October 9, 2011

Congratulations and heartfelt thanks to my cousin Lori Ervin! Running the Chicago Marathon for my benefit, Lori CHARGED it and finished in 3:59:36. NICE! To the generous donors who supported Lori's monumental effort: thank you! Your kindness motivates me to work hard toward recovery so that I can once again be active and enjoy athletic pursuits.

I rode a hand cycle for the first time yesterday. San Diego Parks and Recreation hosts regular rides at numerous city parks and I'm glad to see our tax dollars at work in this program. The friendly and helpful staff shows up with a truckload of bikes and disabled riders are given an opportunity to try the totally awesome sport of cycling. I pedal a hand cycle frequently in the gym but, as is frequently the case, the real thing is a different animal. Despite my miserable performance, I was elated to once again pedal along the shoreline of Mission Bay. I look forward to getting onto a cycle set up for my specific condition, dimension, strengths, and weaknesses. Before long I'll be listening again to the sweet music of fat tires on dirt. Thank you Charlie and Gaen for your help to/from the bike! I hope your backs aren't too sore.

MAHALO
Berkey

October 5,2011: SD Zoo's Safari Park

"NOT RECOMMENDED FOR WHEELCHAIRS" warned the sign, but nothing would keep us from descending the path into Tiger Territory. Our descent from Condor Ridge had gone well and
I was feeling confident in the power-assist wheels and Sara's helping hands firmly planted on the push-grips of my chair. We managed the steep section smoothly,and though no tigers were visible in their paddock, we coasted through the Roar n' Snore campground and arrived victorious at Lion Camp.
As I adjust to life in a wheel chair, I find myself seeking "accessible" activities. Prior to my injury, trips to museums, theme parks, and sporting events were seldom as free time was normally spent on (or off) a trail, underwater, or in the snow. Of course, adaptive sports equipment will enable me to enjoy a form of my favorite avocations, but I can't exactly hop onto a hand cycle and go for a ride on a whim- those types of outings now require planning and assistance from people who know how to deal with my particular challenges and the specialized equipment needed.
I can, however, easily enjoy many of San Diego's myriad attractions with the aid of one companion. Load me in the van, strap me down, and we're off to a museum, airshow, or football game. I look forward to these outings with the anticipation of a sixth-grader going on a field-trip. Of course, none of these trips could happen without the time and effort of numerous, selfless family and friends, to whom I am deeply thankful!

September 13,2011

Throughout childhood, my cousin Lori Ervin and her sisters (then known as the Goetz Girls)were a consistent, positive influence on myself and my siblings. Being a year behind Lori in school, she acted as friend, role model, and mentor. Now Lori has stepped up and is taking on an ambitious project in an effort to help my cause. The following is an announcement Lori made last week. Thank you, Lori, for picking up the torch for my recovery!

Dear Family & Friends,

On October 9, 2011, I am running the Chicago Marathon to raise money for my cousin, Eric Berkey. On January 27th of this year Eric slipped and fell off of the back of his boat while it was still on its trailer. He landed on his head and broke 3 vertebrae in his neck and injured his spinal cord. Eric is a quadriplegic, paralyzed from the chest down. Eric is 40 years old.
Immediately following his accident, Eric’s family started a blog to chronicle his journey. Eric now updates it himself. You can follow along at www.theberkeyblog.blogspot.com. 
Eric grew up in Bloomfield Hills, Michigan. He attended Holy Name Grade School and Brother Rice High School (class of ’89). I have fond childhood memories of time spent with Eric and his siblings. We spent summers Up North at his family’s place on Mullet Lake, enjoyed many summer afternoons swimming in the Berkey pool and even carpooled for years to grade school and high school together. One thing has never changed over the years—Eric’s love of adventure and true enjoyment of life. Eric is a yacht captain, certified SCUBA instructor, has an MBA, and is a former professional ski patroller. 
On May 16th, after 4 months in the hospital and a rehab facility, Eric went “home.” Eric’s sister, Molly, and her husband, Charlie, purchased a new home and made renovations so it would be accessible for Eric. He lives in San Diego with them and is making great progress. However, Eric’s road to recovery will be ongoing. The medical costs of a spinal cord injury can be staggering. The average yearly expense for a spinal cord patient with Eric’s level of involvement the first year after the injury is $712,308. Each subsequent year the average is $105,013. While insurance covers some of these expenses, there are many expenses above and beyond what insurance will pay. Some of these expenses include purchasing a car that is wheelchair accessible, hiring home health aides, and paying for emerging treatments and therapies. 
This is where I am asking for your help. There are two ways to help Eric. The first is to keep Eric in your prayers as he meets new challenges each day.  I also ask that if you are able, to make a donation to help with the significant expenses of a spinal cord patient. A special needs trust has been established for Eric. While these donations are not tax deductible, they do go directly to Eric via his trust. To make a donation via PayPal, click on the “Donate” button on the right side of Eric’s blog (www.theberkeyblog.blogspot.com), or you can write a check made payable to "The Eric J. Berkey 2011 Special Needs Trust" and send it to me at 4121 Antique Lane Bloomfield Hills, MI 48302.
As an alternative, you can also make a tax-deductible donation to the National Transplant Assistance Fund (NTAF) and Catastrophic Injury Program, which offers fundraising assistance and support for those who have experienced a transplant or catastrophic injury. More information on how to donate to NTAF in Eric’s name can be found on his NTAF page, and if you plan to donate, you may want to consider checking with your employer to see if it will match your charitable contribution.
Eric has faced this life altering accident with an unbelievable attitude. His positive outlook and “can do” attitude are an inspiration to me. On October 9th in Chicago I will be running for Eric.
Thank you for your support,
Lori Ervin

September 4, 2011

Go Padres! While San Diego isn't exactly in the running for any title this season, I live here so they're my team. Today, I had the privilege of watching the Padres break a 9-game losing streak when they beat the Rockies 7-2. The combination of a good game, great company (Thank you Jasmyn and Dave!), and a wheelchair-friendly crowd made for an epic Sunday.

Since becoming wheelchair-bound, I have developed an aversion to crowds. Being a few heads shorter than when I was walking, I find myself struggling to blend with the flow of congested foot traffic. Despite copious apologies (both offered and accepted), the frequent near-misses inherent to navigating a crowded venue in a wheelchair can be flustering. But not today!

Doors were opened, paths were cleared, and not one child was run-over. Like Moses parting the Red Sea, I breezed through the crowd incident-free. Petco Park was a most gracious host and I look forward to going back! I hope to soon have the opportunity to test the waters at Qualcomm Stadium- go Chargers!

Cheers, Berkey

August 17, 2011

Since my injury, so many of my family and friends have stepped up and helped out. Your generous support has come in numerous forms- emotional, spiritual, logistical, and financial. Every day, your kindness and caring motivates me to work hard toward my recovery. I don't know how to adequately express the gratitude felt by myself and my family.

I have, however, found a way for people to benefit from any monetary contributions they might make to my cause. The National Transplant Assistance Fund and Catastrophic Injury Program (NTAF) is a 501(c)(3) non-profit organization that I've engaged to assist in fundraising. Funds raised through NTAF will be used to pay for uninsured medical expenses (stem cell therapy, for example). Thanks to NTAF's 501(c)(3) status, any donations made in my honor are tax-deductible!

Any one wishing to make a donation can follow the link on the right side of this blog page
To my NTAF web page. Thanks again to all who have helped me out, your kindness shall not be forgotten!

Sincerely, Berkey

August 4, 2011

The ball is rolling! I've embarked on a path that will hopefully lead to Central America and stem cell therapy. My ultimate destination is The Stem Cell Institute (cell medicine.com) in Panama City. Since the beginning of this journey of recovery, my doctors, family, friends, and myself have been discussing and researching the possibilities, as well as the realities, of numerous alternative or progressive treatments (amazing how open-minded one becomes when put in this situation). Stem cell therapy is one of the most important developments in modern medicine, promising potential benefits for numerous afflictions and ailments, including spinal cord injury.

Stem cell therapy is not readily available in the U.S., although clinical trials are on the rise. Most patients seeking this cutting-edge treatment must travel internationally at significant expense, but the possibility of increased and/or accelerated recovery is well worth the effort- nothing ventured, nothing gained!

We have approached researching this subject with a level of skepticism as there are, indeed, quacks out there who are little more than snake-oil pitching charlatans.
I've been in contact with the Stem Cell Institute via e-mail and phone and, so far, I'm encouraged by the exchanges we've had. The next step for me is to submit an MRI scan of my injury site and an x-ray of my lumbar spine(where stem cells will be injected directly into my spinal fluid).

I am excited by the possibilities of the future, and promise to keep updating as this journey unfolds!

Cheers, Berkey

July 28, 2011

Every few weeks I come into contact with an acquaintance who has not yet heard of my injury- the friend-of-a-friend or a professional relation from a job held years ago. Not everyone is connected to the same coconut telegraph.
Yesterday I rolled into my local dive shop for the first time since I hurt myself. I was there to drop off some gear for repair and was making my way to the service counter when I saw a familiar face. Some of the more tenured employees have known me from ten years ago when I was skippering dive boats out of Mission Bay. After I took off my sunglasses the manager did a triple-take before recognizing me. After he picked his jaw up from the floor I explained what had happened. I felt a little bit guilty for throwing my friend such a curve-ball on a Thursday afternoon but found quickly that if I didn't dwell on it, neither would he. We chatted about the dive business a while and it was like old times...and I think I may get a discount on my bill.

July 18, 2011

Trying to avoid scraping my knuckles on the cheese-grater posing as our front door, I got hung up on the ramp and started rolling backward. A slight drift to the right and my right-rear tire dropped off the edge mid-ramp. The increased angle of recline, combined with the superior grip of my new wheelchair gloves as I tried to slow my roll, sent the chair up and over the anti-tip bars, which performed well in vaulting the chair (and me) even higher into the air. Upon passing the zenith of my trajectory I knew there was no chance for recovery and did the only thing I could: brace for impact.
My head bounced off the driveway like a dropped bowling ball and the air left my lungs in a rush. The stars danced around in my field of vision and I marveled that I was still conscious. My first attempt to inhale failed as did the second and I feared the worst: a spinal cord injury at C-4 or higher had disabled my diaphragm and thereby my ability to breathe. I closed my eyes, concentrated, and drew in a breath. My relief was short-lived as I attempted to move my arms and couldn't. "OK, just breathe," I thought. A few minutes later I again felt relief upon finding my arm function returning.
Unsure whether I was actually Ok, I asked my brother Charlie to call 911. Much to their credit, SD Fire Dept arrived in minutes. Vital signs were checked, EKGs were monitored, IV line and oxygen were administered, and I was strapped to a spine-board, lifted onto a gurney, and loaded into the ambulance. A short ride to Sharp Memorial Hospital and a CT scan followed and I was soon informed that I had not further injured my c-spine or brain. I had rung my bell but was essentially OK ( but for a sore neck and an abrasion on the back of my noggin)and was summarily discharged from the ER with peace of mind.
Nothing like solid head-to-concrete contact and a quick trip to the trauma center to slow a man down in his wheelchair.

July 7, 2011

I have an opposable thumb! While I can't quite deliver any bone-crushing hand shakes, it is novel to turn the pages of a book with one hand. The ability to grasp small objects between the the thumb and fingers is a distinguishing advantage we primates hold over the rest of the animal kingdom- one that I wholly took for granted before I was injured. although still weak and limited to my right hand, every increase in dexterity is welcome and I hope similar improvements in the left hand will soon follow. Time to ramp-up the electrical stimulation!

Cheers, Berkey

June 24, 2011

Bit by bit the back yard is transforming in to a rehab gym. Some elastic Theraband tied here, a sport-cord hung there and my home training circuit grows. Before my injury I was no gym-rat - the world was my gym. Riding my bicycle for fun as well as for fetching boat parts, hefting SCUBA tanks and 100+ lb dive kits, climbing in, on, and around yachts, running, hiking, and skiing- all these things kept me fit. Alas, those things are off the menu (for now). I am now focused on gym work to build strength in what muscles I can, motivated by the promise of new adventures to come. Building up my triceps is essential to be able to ride a sit-ski next winter. Working on cardio fitness will pay when cranking a hand-cycle around Mission Bay. Hell, just being able to push my wheelchair faster and farther is impetus to pump iron. Regardless of which carrot dangles from the end of the stick, I have plenty of reason to throw in those extra reps and sets.

Cheers,
Berkey

Thank You for Making the van a reality!

June 7, 2011

Family and Friends,

Everyday we wake to new challenges. Your love and kindness enable me to face mine.

Thanks to you, the pit crew now has a van to cart me around with! The ramp and tie-down system make easier the task of getting me on the road. The new ride should help to ease strain on the backs of my caregivers, as transferring me in to/out of normal vehicles is inescapably a chore for all involved. The van has quickly elevated my quality of life and reduced the stress of getting around to a multitude of appointments, lab tests,etc.

Thank you for helping me face my challenges. But for you, I could not survive.

May 30, 2011

It had to happen sooner or later- a matter of when, not if. At least I landed on soft grass. The drop from the sidewalk to the turf didn't look like much, but it was enough. As i charged off the concrete walkway the front of my chair dipped, the foot-rests dug in, and I ejected. The grass was mercifully soft and my rescuers Dan and Charlie were only steps away. After a quick assessment we concluded I had not injured myself. They proficiently lifted me, installed me in my chair, and sent me on my merry way. I've experienced plenty of crashes in my life- skis, bikes, cars, and now I can add wheelchair to that list. Another lesson learned: do not drive the wheelchair like it's a mountain bike!

May 27, 2011

Today's lesson: pay closer attention to the wheelchair taxi driver while he straps me in. I booked a wheelchair van to take me to and from physical therapy and they sent me a van equipped with a rear-entry ramp. The driver happened to be the new-hire who had ridden along when I hired the same cab two days earlier.
He did a great job securing my chair with four heavy-duty self-tightening ratchet straps. Neither of us thought to put a strap around my body. You can guess what happened at the first stop sign...
Due to my level of injury I lack control of the core muscles that provide "trunk control",so when the driver hit the brakes my torso and head continued traveling forward sans resistance. Had the middle passenger seat not been in front of me I would still be picking dashboard from my teeth. Leaning my forehead into the seatback and unable to re-erect my body, I thought "if he just hits the gas I can right my self back into my chair." Alas, my driver noticed my precarious position and dutifully freaked out. He sheepishly pulled over and corrected the situation, apologizing profusely all the while. I told him not to sweat it as it was equally my fault- it was my seatbelt, after all.

Be safe out there,
Berkey

may 20, 2011

Went for my first push around the new neighborhood. My sister Molly expertly guided me through some gnarly urban terrain. Olive Grove park is just around the corner but getting there via wheelchair is an adventure. The curbs I once bunny-hopped easily on my mtn bike are now cliffs overwhich lies certain severe pain. Crossing the street evokes memories of playing Frogger and that bus isn't slowing down...
Our perilous journey brought us to the sanctuary of the park, where green grass and abundant shade trees foretell summer cookouts to come.

While I am frequently humbled by my new perspective on the world, I also see opportunity and potential where I never would have looked before. I also have a new found appreciation for the smallest pleasures- the sun on my face, the sound of wind in the trees. Whatever challenges I face, I realize that I am lucky to be here and I'm grateful for the people who make my very existence possible.

Berkey

May 17, 2011

I'm back in San Diego and it's great to be home! Molly and Charlie's new place already feels like home. I'm excited to get settled in here and start up my outpatient therapy program. The last four weeks in Pomona have been productive but I'm glad to be near family and friends again. I look forward to catching up with everyone I've missed this past month!

Cheers, Berkey

May 14, 2011

When my PT told me we were going bowling on our weekly community outing, I envisioned broken toes (not that I'd feel them) and wheelchair wreckage sliding down the lane. As it turns out, quadriplegics can bowl safely after all. The bowling alley provided us with ramps which we aimed and then pushed the ball down to an agonizingly slow roll toward the pins. Fortunately, the gutter rails were raised, enabling the ball to pinball its way to the pins and a guaranteed knock-down of at least one pin. I bowled a 79, which isn't much worse than my scores were when I was able-bodied...maybe I should have been bowling this way all along.

It looks like I'll be discharged Monday, May 16 and returning to San Diego! I'm looking forward to going home and being close to family and friends. It's been a productive month up here in Pomona but I am definitely ready to get back to home turf.

Keeping it between the gutters,
Berkey

May 10, 2011

They said it couldn't be done. They said the SUV was too tall for me to transfer safely into. Dan and I were not deterred. We opened up my climbing kit and started pulling out gear. Using an array of pulleys, slings, carabiners, and a technical ascender, we rigged a 3 to 1 purchase and successfully (and safely) hoisted my carcass into Dan's Range Rover. Leave it to a couple of climbers. All that time spent watching MacGyver is finally paying off!

Don't let anyone tell you what can or can't be done!
Berkey

May 5, 2011

Off-campus trip yesterday! After wrapping up therapy for the day Dan and I grabbed a cab down to the day spa for massage and "manscaping". I've had very few professional massages but now I'm convinced that a deep tissue rub should be a weekly component of my therapy program...daily would be even better, of course! Afterward we hit up King Kong sushi- for the third time this week...yes, it's that good.

This afternoon, My therapists put me in the standing frame, a device that stands me up so my legs bear my body weight, an exercise that helps maintain bone density. After checking my blood pressure for orthostatic hypotension, they blindfolded me and strapped a stick to my hand. I proceeded to swing blindly at a pinata, something I haven't done in decades. Amazingly, some of my flailing resulted in solid blows to the target and now I'm enjoying a tootsie-pop as I write.

Happy Cinco de Mayo!
Berkey

May 3, 2011

There's a special place in hell with a VIP velvet rope for people who steal from hospital rooms.  Unfortunately, one of them came through my room while I was in therapy, and took the brand new iPad that Mike & Joanne Knapp were so thoughtful to buy for me recently.

On a lighter note, I did play my first card game today.  Actually, it included both cards & chips.  It was a challenging test of dexterity.  I didn't win all of the chips, but I did keep most of my clothes for the duration.

Today I keep in mind that although there are morally bankrupt people that challenge us often, all of the positive people like you in my life kept me smiling & moving forward.

Love all,  Berx

April 27, 2011

Cookies,no problem. Bacon wrapped shrimp, piece of cake. Pizza, not so much. When facing limited hand function, some finger foods are more practical than others. Today we made our own pizzas in occupational therapy. By the time I finished constructing and eating my Boboli I looked and felt like a one-year-old child. Imagine trying to eat pizza without being able to pinch the crust and pick it up- it takes two paws to wrestle that first bite to your lips. Another day, another t-shirt destroyed.

Bon appetit,
Berkey

P.S.- the pizza was tasty indeed!

April 26, 2011

I hope you all had a great Easter holiday! Despite gloomy weather in Pomona I spent a cheerful day with family and friends. Good companions, food, and laughter can brighten any gray sky!

Big news of the day: I noticed the slightest twitch of motor control in my right thumb- a huge step closer to recovering function in my hands! I can see movement in the flexors of my forearm and a tiny bit of flexion in my thumb. Every day holds little victories!

Love to all,
Berkey

April 21,2011

Greetings from Pomona! I'm getting settled in here at the Casa Colina Transitional Living Center.  Therapy continues and I actually receive 5 hrs daily here rather than the 3 hrs provided at Sharp...nice!  After the daily workouts are done I wheel a few hundred yards over to Dan Foley's  place to chillax and eat dinner (far superior menu to the hospital).


The inpatient hospital across the parking lot has a pool so I hope to experience some aqua-therapy.  Otherwise,the routine is similar to what I was doing at Sharp Rehab with an emphasis on getting out of the hospital and back into the "real world" ...which I earnestly look forward to!

Love to all,
 Berkey

April 17, 2011

Yesterday's chili cook-off was a huge success! The combination of the perfect weather, delicious chili and surprisingly large turn-out made for a wonderful evening. Thank you to the San Diego Mission Bay Boat and Ski Club, and especially Commodore Mike Smith and his wife Chris for organizing the event. And, a special thanks to everyone who came out in support of my cause, your generosity will not be forgotten!

On Monday, I will be moving to another facility. I am heading to Casa Colina in Pomona for up to four weeks. It's a two-hour drive north of San Diego so don't feel bad if you are not up for the drive. It's a long way to go for a visit and my buddy Dan Foley will be up there with me for the duration. We can all catch up on visits when I get back in May. If you happen to be in the area, however I'd love to see you.

Love to All, Berkey

April 10, 2011

Last night I dreamed I was skiing. The dream, vivid and real, woke me from a sound sleep. My heart was pounding and my mind was racing with the familiar rush of skiing, a buzz I have loved and craved all my life. I've experienced similar dreams countless nights before, but last night was different- for the first time I was riding a Sit-ski. This change, perhaps as much as any measure of progress I've experienced, is very encouraging to me. To me, the fact that I envisioned myself riding adaptive ski equipment shows me that I'm opening up to the possibilities of the future. One way or another I WILL carve my way down snow covered mountains.

April 4, 2011

Like a recruit in bootcamp, I got my first pass off base today. We were working on dialing in the manual assist wheel chair last week and today we got to give a it a real world test as we went down to the boardwalk by the ocean in Mission Beach. Didn't end up in the sand or hit any rollerbladers, so the trip was a success! Molly and Dan Foley came with me, along with my therapists and we cruised along the boardwalk for an hour or so. We also grabbed some tacos down by the beach.


More exciting news, Molly and Charlie are now in escrow on a new house! I've only seen pictures but the place seems great and has an ADA equipped bedroom/bath!


Love to all!

March 31, 2011

So I was laying in bed a few days ago, visiting with Molly and Charlie, when the inside of my left palm began itching. So i went to scratch it and noticed that the sensation was different than what I've been feeling, which is basically a pins & needles feeling in my hands. So i asked Molly to come over with a ball point pen and poke and prod both hands so that I could compare them. I was excited to realize that normal tactile sensation had returned to my left thumb and forefinger and the surrounding palm area. The doctor was excited as well when I told him because that enervation comes from below the level of my injury. Bottom line = my spinal cord is slowly waking up and I look forward to more of it!

Also, I'm working with my physical therapist to get dialed in on a manual chair with power assist wheels as this is the type of chair that I hope to be using when I get out of here. The manual chair will be much more transportable than the 300lb power chair that I'm currently getting around in.

My friend Justin James visited yesterday with his guitar. We were treated to some excellent original music from his upcoming album. Thanks brother!

Love to all,
Berkey

March 22, 2011

Back in rehab! After a week in ICU dealing with major blood clots its great to get back to work.  I lost a little ground but should regain it quickly.  Got outside for the first time in 9 days...that sunshine sure felt good!


Love to all,
Berkey

March 19, 2011

Tonight is my last night in ICU. I'll be moving back to the rehab center tomorrow morning after a week of having two machines and seven IV's plugged into my body. I had an enzyme and a blood thinner pumped into my legs to dissolve the clots as well as an ultrasound wire that would electronically assist in the breakup of the clots. Dr's say that the blood clots in my legs are 90% gone, although they are still very swollen. The swelling should go down in a few days. I'm looking forward to getting back into the rehab program as I've sitting on my back for a week straight and it has been pretty monotonous.


Thank you so much to all who have made donations to the trust. Your generosity is overwhelming and will always be remembered.


I look forward to receiving visitors again when I get back into the rehab center, email Molly if you want to check on scheduling @ berkeygirl@gmail.com.

Another speedbump in the road to recovery...

Molly and Charlie here, with a quick update. 
Friday, Eric's ankles started getting a bit swollen, and his Doc and nurses attributed this to the mild steroid that they had started him on. On Saturday morning his legs were very swollen, almost looking like the muscles which had atrophied away came back....but we knew it was just swelling. The Doc and nurses still thought it was a drug side effect. Sat night they sent him to radiology to be sure, and it turns out that he has developed bloods clots in his legs. The filter that was put in place previously did what it needed to do and caught the blood clots before they could do too much harm (That was a great call with that procedure doc!). Eric's blood pressure and temps have been swinging up and down, and he hasn't been sleeping very well, so he is quite tired.  He is currently on bed rest until tomorrow (Monday), when he goes from rehab to the main hospital where they will set him up with procedures to dissolve the clots directly.  This is anticipated to be about 2-3 days in the main hospital, after which he will return to rehab and restart his "normal" rehab routine.  He is back on blood thinners to deter the formation of any new clots, and will stay on that for about 6 months...so that this does not happen again. 


On another note, we got Eric's special needs trust set up late last week, and should have his bank account squared away early this week. We are planning on setting up a Pay Pal link on this page for those of you who would like to donate to help us add to a better quality of living and recovery for Eric. 


Since the trust is set up, you can also send checks made out to:
"Eric Joseph Berkey 2011 Special Needs Trust"
or
you can make the checks out to Marienne Colvin, Daniel Berkey, or Charles Colvin , followed by "Trustee" (i.e. Marienne Colvin, Trustee).
We will be the 3 trustees associated with his account and will do everything in our power to get Eric what he needs. Please mail checks to:
1118 Fresno Street
Unit 5
San Diego, CA 92110


If you have any questions, please feel free to contact us.
Molly (aka Marienne) or Charlie --> berkeygirl@gmail.com
Eric --> captainberkey@gmail.com


We want to thank everyone for your help and contributions as well as all the positive healing vibes coming his way!
Sincerely,
Molly and Charlie

March 7, 2011

It looks like I'm past the speed bump with the ulcer. All my vitals/blood chemistry seem to be stabilizing and improving on their own, so the doctors are reducing some of the meds they had me on last week. I'm glad to be back at work in the therapy gym and I don't seem to have lost any ground in the 3 days that I had to miss. Normally we don't do therapy on the weekends, but I had full sessions on both Saturday and Sunday to make up for lost time.


The rehab hospital has discharged quite a few patients, so I'm enjoying a private room for the time being. The only drawback is that my room has become the storage closet for extra equipment, but the oxygen bottles and other machines are quiet roommates.

3/3/2011 - Speed bumps in the road to recovery

Haven't updated the blog in a while because of a minor medical issue. I began having fainting spells last weekend that were confusing the hospital staff and myself of course. Initially we thought it was orthostatic hypotension which is a drop in blood pressure common to SCI patients that when transitioning from the horizontal to vertical position can happen. But it wasn't long before we realized that I was suffering from a bleeding ulcer in my GI tract that resulted in significant blood loss. So, they first transfused 6 units of blood into me and then performed endoscopy which confirmed that it was a duodenal ulcer (exit point of the stomach). No further treatment was necessary for the ulcer as it was already healing. the suspected cause of the ulcer was the combination of steroids and blood thinners that have been pumped into me for the last month. Normally they wean you off the steroids, but due to the ulcer they cut me off cold turkey. They also had to cut the blood thinners. Due to the risk of blood clots without blood thinners, they installed a inferior vena cava filter, which is comparable to the frame of a tiny umbrella that is placed in the largest vein in the body.


I missed out on a few days of therapy, but things seem to have stabilized and I got back to therapies today.
Any complaints that I may previously had about the food in the hospital now have been retracted from being on a clear liquid diet for the past 4 days. I'm now back to a normal diet again!
Thanks again for continued kind thoughts!
Best regards,
Eric
(typed by Molly)

Wednesday the 23rd Occupational Therapy

Today the OTs (occupational therapists) worked with me on self care.  I actually shaved myself with minimal bleeding, and also brushed my own teeth.  These tasks are accomplished with a device known as a "universal cuff" which is basically a velcro strap that goes around my hand and has loops and pockets to secure razor handle, toothbrush handle, etc.  OT's main goal is to teach me skills to enable me to be more independent in caring for myself as everyday tasks that I had always taken for granted are far more challenging in my new situation. 
I am currently dictating this post, while getting a manicure from Molly (sister). 
I can't express my gratitude enough for Charlie, Molly and Dan Foley and all that they do for me.  I don't know how I would get through this without them.
I appreciate everyone's well wishes and positive vibes.  I know it all adds up and I need all the help that I can get. 
Thank you all!!

Friday update

Thanks again for every one's continued support. I can feel all the good mojo coming in. Basically, therapy is focusing on building strength in my arms since that's the key to me becoming independent again. So there's lots of weight training, practicing balancing myself in a seated position, stretching and maintaining flexibility. Probably be here for another 7 weeks or so and then I'll be moving back into a private residence, though we don't know where yet. My team of doctors and therapists say I'm doing well considering how recent my injury was which is encouraging. The day to day routine doesn't change a whole lot, just a matter of working hard at my therapy and trying to get back what I can.


As I get settled into my routine here, I'll be able to see more visitors. Weekends will be a good time, since we don't do much in the way of therapy on the weekends. People who do wish to come visit, please contact my sister Molly to arrange a time @ berkeygirl@gmail.com. thanks again for all the support, I really appreciate your kind thoughts, they keep me going through the tough times.

Sat. Feb 12

Today I worked more with he physical therapist on arm movement and hand control. Still don't really have "hands" so to speak, basically my hands fell like clubs of wood on the ends of my arms.But the therapists say they are really impressed with how much my arm strength and movement is returning and maintaining. Everyday is about making little steps ahead, since that's the only direction I can go in.


I know a lot of people would like to come to visit. As the dust settles and I get into a routine, we'll set up times that people can come and visit. Thanks again to everyone for all your support. Please don't feel slighted if I don't contact anyone right away, I'm still making a big adjustment to my new reality.

first time typing!

The occupational therapists made special splints for my fingers and i'm actually typing this myself! Another step in the right direction!

At Sharp Rehab

So I was transferred to Sharp Memorial Rehabiliation Center on Tuesday the 8th of Feb. It was fairly uneventful...except we had to make the trip twice because the ambulance drivers forgot to bring paperwork. Thankfully, I have been cleared to remove my neck brace while in bed and only need to wear it during therapy sessions or when I'm out and about. I'm looking forward to settling in here for the next couple of months and working hard on the road to recovery. Therapy right now is focusing on gaining more dexterity in my hands and strengthening my arms and core so that I will be more mobile. I appreciate everone's kind thoughts, but right now I can't answer my own phone nor type (Molly's dictating right now). I think after a week or so of settling in here and getting into a routine I should be able to start receiving visitors. Please continue to send your prayers and best wishes my way, as space is very limited in my small room and there is no room for flowers.
Thanks again to everyone for your support!

Background Info

Hi Everyone!
Eric signing in from Sharp Rehab (as dictated to Molly). For a little background, here are the 2 emails that were sent on Feb. 1 and 4:

Feb. 1:
First off, thank you so much for all of your kind words and support for Eric.  It is helping all of us cope with this experience.  We are relaying all of your thoughts and messages to Eric.  As you all know, Eric has a vast number of friends and family across the globe and in an effort to keep everyone informed about Eric’s progress efficiently, this will be the first of many updates.   

As a brief summary, Eric slipped and fell off the back of our boat while it was on the trailer on the evening of Thursday, January 27, 2011.   Eric was alone when the accident occurred, so we are not exactly sure how it happened, but we know that he fell about 8 or 9 feet and broke 3 vertebrae in his neck (C-1, C-6 and C-7).  Eric spent a cold night on the ground and was found on Friday morning by the commodore of the boat club who immediately contacted EMS.

Eric was admitted into Scripps Memorial Hospital in La Jolla, California where he has received excellent medical care from the amazing staff.  Eric has been through two surgeries with Dr. Scott Leary (www.sentaclinic.com) and his trauma team.  Eric’s spinal cord has suffered a major trauma and as far as the extent of the damage and future prognosis, only time and prayer will tell at this point.

We were all extremely thankful to learn that there is no evidence of any brain injury and Eric is able to breathe, cough, and swallow on his own.  Eric’s breathing tube was removed for a few hours this morning and we were able to share a few words with him and he with us.  He has been re-intubated for the night to allow him to rest easy and allow the swelling in his neck to subside.  We have been by his side as much as possible and with each small victory his mental state improves.

Once Eric’s stability is more certain, he will be moved from the ICU to a step-down unit for further progress, and then on to a rehabilitation facility.

We were able to joke a little with him yesterday and he even “raised the roof” for us with both arms when he heard the breathing tube was coming out.  Not only that, but he also gave us the “OK” sign that SCUBA divers use, by putting a fist onto the top of his head. He is growingly aware of the love and support he has and will receive from all who have ever known our brother. We as a family can only thank all for your concern and care but do ask your communications recognize he is still critical and unfortunately will not be able to express his personal responses for a bit more time.

Due to ICU protocols and limitations, Eric cannot receive flowers/balloons/dancing girls…however a letter or card would be appreciated and passed along to Eric. Please send correspondence to:
Molly and Charlie Colvin (sister and brother-in-law)
1118 Fresno Street, Unit 5
San Diego, CA 92110

Feb. 4:
It’s been a tough couple of days, but we have had good triumphs each day. Eric was extubated (for the 2nd time) on Wednesday morning and is continuing to do excellent with his lungs and breathing treatments. He passed his swallow test yesterday with flying colors and is eating solids/soft foods…In N’ Out Burgers soon!

Eric can move his arms and shoulders and has started physical and occupational therapy. Eric is also gaining more and more sensation in his trunk through the middle of his stomach and back.  He is working on his hand and arm coordination. Eric is having “pulsing energy” sensations that start in his hands, and go down to his toes.  Recently, they are corresponding to twitches in his legs and feet, which we are taking as a great sign that his nervous system is trying to heal itself. 

He will be moved to a rehab facility next week and soon can see friends, but please respect his dignity and let’s not overwhelm him until he’s ready to see people. The goal is to move him to Sharp Rehab off the 163, near Balboa, because it has been highly recommended by doctors and friends…plus it is close to home so more family and friends can lend support.  His mood is not upbeat and so seeing friends now would be difficult, as you can imagine no one wants to be seen laying in a hospital bed, and you can only answer the “how are you feeling/doing” question so many times.  We have been reading emails and texts from you, and letting him know that he has  many people pulling for him and waiting to lend support when you can.

Everyone has been asking if/where they can send flowers and gifts.   Currently, while he is in ICU, no balloons or flowers are allowed, however he does like cards….especially the ones from the wee little ones (nothing spells out love like finger paintings or crayons).  We are currently looking into the road ahead, and we know that he will need support from all of us.  We are looking into ways to set-up a non-profit, or trust for Eric and other SCI (spinal cord injury) patients, and hope to get that together soon so that anyone who wants to help him out, can.  Thank you all too, for the stories and support from all of you who have and do deal with SCI…..every positive story gives him hope and real goals for his future.

***************
One of his best friends Summer wrote:
“When we were alone, I asked him if he was scared. he said super scared.  I told him don't be. I said don't feel guilty, anyone can fall off a boat in the middle of the night.  It’s an accident and we will get through it.  We will take this on like any other physical challenge, climbing, extreme skiing etc..  There are challenges and the triumph is there.  It will be an amazing journey for his spirit and all of ours.”

“I told him if it were me in that hospital bed, he would rally the hell out of me.  I made him laugh a bit and I will see him tomorrow. He is now watching movies and trying to be comfortable.”

“I can tell he is heartbroken so I know that the rehab time will be tough.  But we know if anyone can get back on their feet, its Berkey.”
***************

We had music therapy on Thursday and two very kind (and cute) women sang Buffalo Soldier to us, accompanied by a little folk guitar. Then as a family, we composed our own song! Which we then sang together…some of us just spoke the words cause I know I can’t hold a tune! Here’s what we came up with; imagine a reggae tune…kinda…the woman was from North Dakota trying to sing reggae…

“Sail Together, Stay Together”
Warm and calm at sea;
Listening to whale song;
Lights on the water;
Colors of the sunset.

Hey Mon, Hey Mon
Don’t cha’ know, don’t cha’ know
Life at sea, is how we go

Sunsets in Baja;
Sound of the waves;
Smell of dead fish;
Glowing plankton.

Hey Mon, Hey Mon
Don’t cha’ know, don’t cha’ know
Life at sea, is how we go

Sailing with the family;
Setting a spinnaker;
Hanging with friends;
Playing down island.

Hey Mon, Hey Mon
Don’t cha’ know, don’t cha’ know
Life at sea, is how we go